The Myeloma ACTION Team is re-launching: We are here for you!
Myeloma ACTION Team Members will receive training through webinars, virtual meetings, and written materials. This training will help you explain the IMF’s and the myeloma community’s advocacy priorities to your elected officials and their staff. You will also be provided with training to improve your understanding of the legislative issues that are most important to the myeloma community as of right now. These issues include things like affordable access to therapies and clinical trials as well as increasing myeloma research funding. You will have opportunities to raise your voice via the media, by advocating on Capitol Hill, and by responding to and sharing “Action alerts” from the IMF.
Why is this important? The decisions being made in Washington impact nearly every facet of care patients receive. These decisions affect research funding levels, what Medicare and private insurers will cover, drug prices, and more.
The voices of patients and their loved ones are the most important for legislators to hear. It is extremely important for decisionmakers to be informed about the issues our community faces. Being a member of the ACTION team gives you the chance to be heard and impact the process. Your voices matter!
What ACTION Team Members Do:
- Participate in quarterly calls (January, April, July, and October).
- Share myeloma advocacy news and ACTION Alerts with your friends and community.
- Share your personal experience to influence legislators.
- With the help of IMF staff, initiate and build relationships with your elected officials and your staff.
- Share your experience with myeloma to help shape IMF’s policy priorities.
ACTION Team leaders share a brief description of how Congress and the legislative process work for advocates.
Thank you for your interest in the International Myeloma Foundation’s Myeloma ACTION Team, also known as “Advocates Committed to Inspiring Others Nationwide!